Its longitudinal design, coupled with clinician-reported data from routine practice, will generate a comprehensive understanding of Alzheimer's therapy outcomes in real-world settings. The registry ...

An international study of thirteen registries in five countries suggests that disease registries enable healthcare professionals to engage in continuous learning as well as identify and share best ...

Sanofi SA ($SNY) announced an update on their ongoing clinical study. Study Overview: Sanofi is running a global registry called “Atopic ...

Editor's note: This story has been updated multiple times, first on April 25, 2025, then again on May 7, 2025, to address new developments, including contradicting statements from health officials and ...

Since the introduction of disease-modifying therapies for multiple sclerosis (MS), evidence from disease registries has shown how the therapies work in the real world and reduce the effect of MS on ...

Rare disease registries are critical infrastructures for advancing clinical research and improving patient care in conditions where low prevalence and dispersed patient populations present significant ...

COLUMBIA, S.C. — A new tool is now available to South Carolinians living with sickle cell disease as the state's Department of Health and Environmental Control (DHEC) launches the South Carolina ...

RESEARCH TIANGLE PARK – Target RWE, a Durham-based clinical analytics company, has launched 35 new observational disease-state registries to support decision-making in health care. The registries, ...

U.S. Sen. Byron Dorgan introduced legislation Wednesday that would establish national registries of multiple sclerosis and Parkinson's, two neurological diseases whose causes and cures have eluded ...

The Utah Parkinson Disease Registry (UPDR.org) was launched last week in an effort to understand an apparent rise in PD by 30 percent over the last ten years in Utah, and to uncover causes of the ...

To assist him in his quest to determine the cause — or causes — of autism by September, Health and Human Services Secretary Robert F. Kennedy Jr. and his hand-picked researchers will have access to a ...